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International Federation for Spina Bifida and Hydrocephalus
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International Federation for Spina Bifida and Hydrocephalus - Homepage


Continence management

Latex allergies

Pressure sores


Prevention of neural tube defects

Living with SB: testimonies

Leaflets for adolescents with Spina Bifida


Spina Bifida

Information for parents-to-be

I am pregnant with a child with spina bifida or hydrocephalus.    

What now? Why me?

Confusing feelings and emotions when you hear the news that your baby has spina bifida or hydrocephalus. It is important to take some time and think and talk about what you feel. Other parents wrote down what they think is important when hearing this news.

Pregnancy and Spina Bifida

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IFSBH Annual Report 2007

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International Disability and Development Consortium