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International Federation for Spina Bifida and Hydrocephalus
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IF international ListServ

 

The IF international ListServ is an eCommunity for adults with Spina Bifida and/or Hydrocephalus (SB/H) from all over the world. It is funded by an unrestricted educational grant from Pfizer. You can use the list to share information, to correspond and work together on issues of common interest or to advise IF on any issue relevant to adults with SB/H.

The following information has been provided to allow the ListServ to operate in the best way possible. Please save a copy for your records as you may find it helpful in the future.

Add yourself to the ListServ:
Send an email to jon.burke@ifglobal.org. Leave the subject line and the body blank.

Send a message to the ListServ:
In order to post a message to the ListServ, please send an email to international@lists.sbaa-communities.org.

Remove yourself from the ListServ:
If you want to be removed from the ListServ, send a blank email to international-off@lists.sbaa-communities.org. Leave the subject line and the body blank.

General ListServ Etiquette:

So that we are all able to get the best out of using the list, you should always make sure that

  • You remember there are people signed up to this list from all over the world. That means it is very important to respect each others experiences, cultures and views.
  • You remember there are many people on the list who do not speak English as a first language BUT it is the language most non English speakers from different countries use to communicate with each other. Therefore please use English when sending a message to the ListServ. IF apologises if this puts some people off sending messages to the list but at the moment automatic translation is not possible.
  • All messages sent to the ListServ must be about Spina Bifida or Hydrocephalus or related topics only.
  • You do not post brief responses such as "I agree" or “Thank You” to the list because it creates unnecessary traffic in our email inboxes.
  • You say what your message is about in the subject line.
  • You do not use foul language or insulting remarks.
  • You do not post comments meant for specific individuals such as "how are you", "fine thanks", and "what's new" to the ListServ. They should be sent directly to the email address of the person the comment is intended for.  In short, if it is not meant for everyone, it should NOT be posted to the list.
  • You should keep messages brief and to the point. If you have a long document, post a description on the ListServ and offer to send it to those who are interested.
  • If you have a problem with some of the messages, email the list moderators or the person sending the messages. Refrain from sending complaints to the entire group.
  • Avoid using all capital letters in your messages. This is considered the same as SHOUTING and is not appreciated by others.
  • Most importantly, remember that nothing is ever confidential or private when using the web to communicate. Double-check your message before sending. If it contains personal or confidential information it might be best to use another method.
  • Anyone who does not stick to these rules will initially be contacted directly, off the list, and asked to ensure they observe the rules in future. If they continue to ignore the rules after that they could ultimately be removed from the ListServ.

 

More articles

19/02/2008 IF international ListServ
14/03/2008 Dutch Health Council advices on optimal use of Folic Acid
25/04/2007 La 18a IF Conferencia Internacional "Tomorrow" ("Mañana")
19/04/2007 Visita de entrenamiento de IF en Vietnam
19/04/2007 Entrenamiento en el orfanato Go Vap
23/01/2007 Visitas a las casas de dos familias el las afueras de Moshi, Tanzania
11/01/2007 enanos y espina bifida
5/01/2007 No sentirse abandonado….
13/11/2006 Propuesta para la fortificación obligatoria de pan fue aprobada
16/10/2006 Dr. Borgstein
16/10/2006 Presentación del señor Pierre Mertens
12/10/2006 Message from Geert Vanneste
12/10/2006 Un breve reporte de Polonia
7/09/2006 Médicos en Holanda restituyen la sensación en el pene.
15/05/2006 La junta directiva de la Agencia de Estándares en Alimentos (FSA) delibera sobre acido fólico y salud
15/05/2006 Actualización sobre la campana de IF para fortificación obligatoria de alimentos
15/05/2006 El tratamiento CIC en el Vietnam
15/05/2006 La primera actualización sobre Espina Bifida e Hidrocefalia en la India
19/12/2005 IF y su miembro en Holanda, BOSK, toman acción contra el protocolo de “Groningen”
25/10/2005 Programa de Radio BBC 4 sobre Espina Bifida en Guatemala
24/10/2005 Publicaciones de la SBAA: Guía para adultos con Espina Bifida
24/10/2005 El huracán Stan afecta muchas personas discapacitadas en Guatemala.
4/10/2005 VI Congreso virtual - "Integración sin Barreras en el Siglo XXI"
16/08/2005 Junio 27, 2005 día para adultos
6/06/2005 Nuevos países Europeos adaptan la Resolución de IF, “El derecho de ser diferente”
4/04/2005 FONDOS ESTRUCTURALES, UNA PRUEBA DE LA CREDIBILIDAD DE LA UNION EUROPEA
31/03/2005 Otras actividades de la ASBIHP
16/03/2005 Fortificación voluntária
24/01/2005 Adelanto revolucionario
20/12/2004 Convivio Navideño de la Asociación Guatemalteca de Espina Bífida
7/12/2004 La conexion Guatemalteca/Colorado
29/11/2004 discuros de inauguración de Pierre Mertens
29/11/2004 El taller sobre hidrocefalia en Uganda, África, fue muy exitoso
2/11/2004 El costo de la vida para personas discapacitadas en Inglaterra ES MAS QUE UNO CREA.
15/10/2004 Superman no esta mas.
4/10/2004 Crossing Borders - opening speech - Eli Skattebu
4/10/2004 Crossing Borders - Opening Speech
4/10/2004 THE VALUE OF LIFE WITH A DISABILITY
4/10/2004 Emily's letter to the President

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