english español français nederlands português italiano
International Federation for Spina Bifida and Hydrocephalus
home search sitemap contact disclaimer
International Federation for Spina Bifida and Hydrocephalus - Homepage

Newsroom archive

Subscribe to our newsletter

Unsubscribe from our newsletter



What's new?

Training in the Go Vap orphanage


Visting the Go Vap orphanage

There is an Orphanage in Go Vap district and it has been there for a very long time already.  Until now, this Orphanage received children from everywhere and in many different ways: Sometimes they received a child just lying lonely near a tree, or in front of the door of the Orphanage, or brought in by a neighbor or by the dustman. 
But most of these children were coming from the Maternity hospitals such are the Hung Vuong and the Tu Du hospitals!  After the delivery, parents saw that their child was disabled. How little the disability may have been, the disabled child was not welcome in the family.  Or, a pregnancy of an unmarried young mother.  Quickly, the babies were also refused so they would not be a further disturbance for the mother’s social life.  It seemed that there was something much more important in their lives then this new life.



Visit by IF and HI

When   children with Hydrocephalus arrived here via the hospitals, they were brought in with very limited information, especially when a baby was disabled

The  doctor  of  this  Orphanage tried her best to  refer all  children  with Hydrocephalus  to  the  general  hospital  for  a  check  up, but most of them were nominated too late for the placing of a shunt, even if the Orphanage managed to get a free shunt.

In the long term, these children will be faced with a very large head circumference which can easily cause pressure sores and head aches, while also becoming an extra  burden for the personnel.  

The management of this Orphanage were open for suggestions and showed their interest for further updating and possible training for their personnel, after a quick visit by Mr. Pierre Mertens (IF), Tuong Van and Huong (HI) in March 2007. 

Training staff of the orphanage
Huong shows a nurse of the orphanage how to measure the head

The first training was done on April 4, 2007 to the personnel involved who worked in the wards where children with Hydrocephalus were taken care of. 

The training included measuring the head circumference and record its result in the leaflet created by IF. 



What was very interesting on that leaflet is that they could see directly if the head circumference was normal or abnormal while taking the measurement.  Detect  abnormal  signs  by  too  high  CSF   pressure.  This should be a systematic follow up. 

The  next   training   will  be  given  on  April 27,  theoretical   and  demonstration  of   CIC by   a    child  who  was  operated   for  Spina bifida, and who is now  incontinent.   The   other   training  will    be  focused  on  pressure  sore  management,   especially  with   severe Hydrocephalus which quickly causes pressure  sores..

text from HI


More articles

7/02/2008 IF international ListServ
3/09/2008 Medicina e Persona Rimini Meeting 2008
2/06/2008 Endoscope installation at Hue Hospital, Vietnam
2/03/2008 Dutch Health Council advices on optimal use of Folic Acid
12/02/2008 IF visit to the Ugandan Parliament
11/02/2008 Introducing Olivia Nakato
12/02/2008 The gift of Deep Experience
11/02/2008 Introducing Rebecca Nakitto
11/02/2008 IPATH training in M'bale, Uganda
17/01/2008 AVSI and IF cooperate in Uganda
12/11/2007 IF-FFI meeting on mandatory fortification
25/10/2007 Luis Quaresma (Portugal) reports from Angola
25/06/2007 Endoscopic Third Ventriculostomy in progress
21/06/2007 Africa and "our" children
31/05/2007 Stories from Africa
11/05/2007 Clean up awareness campaign organized by SHAK - Nairobi
9/05/2007 5th International NTD Conference
6/04/2007 IF training visit in Vietnam
6/04/2007 Training in the Go Vap orphanage
2/04/2007 WHO seeks disability experts through IF
20/02/2007 PhD study on the effect of Spina Bifida on parents
18/01/2007 Home visits in Moshi area
9/01/2007 Trolls and spina bifida
4/01/2007 The Independent Living Center and Munishwor Society of Katmandu, Nepal, established a special contest
22/12/2006 not feeling alone…
13/12/2006 UN adopts Disability Convention
26/10/2006 Proposal for mandatory fortification of bread approved
25/10/2006 Conference Medicina e Persona, Italy
19/10/2006 article Clementina Isimbaldi for the Italian newspaper Libero
16/10/2006 Dear Friends of CCBRT
10/10/2006 without creating an NGO island…
10/10/2006 Short report from Poland
10/10/2006 Preventing Spina Bifida through Folic Acid Flour Fortification
4/09/2006 Dutch physicians succeeded in bringing back feeling in penis
23/08/2006 Elections are Congo's hope
7/07/2006 Resolution on active termination of life of newborn children with impairements and the right to live
12/04/2006 UK wants to improve folate status young women
4/04/2006 Update on IF's Campaign for Mandatory Food Fortification
31/03/2006 CIC treatment in Vietnam
30/03/2006 Update on the IF Conference in Helsinki
28/02/2006 1st national update on Spina Bifida and Hydrocephalus
19/01/2006 New study comparing two hydrocephalus treatments in Africa
18/01/2006 IF President to attend First National Conference in India
18/01/2006 IF lobbies Irish MEP for mandatory flour fortification
19/12/2005 IF and its Dutch member BOSK lobby against the “Groningen protocol”
19/12/2005 Oldest person with spina bifida
15/11/2005 IF's African workshop
10/11/2005 Ireland's IASBAH and IF towards European Food Fortification
10/11/2005 Meeting with Dutch physicians de Jong and Kompanje
24/10/2005 BBC Radio 4 programme on spina bifida in Guatemala
18/10/2005 NEW Publication from the Spina Bifida Association
12/10/2005 Tom Baroch reports on the situation in Guatemala
28/09/2005 Training in Thailand
28/09/2005 Second conference: "Building Bridges"
28/09/2005 A National Live Satellite Broadcast and Web Cast
28/09/2005 WHO resolution
28/09/2005 Meet Up!
28/09/2005 New staff in the Brussels IF-office
4/08/2005 July 27, 2005: Adult day
15/07/2005 IF adopts two resolutions to the United Nations
12/07/2005 32nd SBAA and 16th IF Conference, Minneapolis, 26-29 June 2005
13/06/2005 A long process to become adult for disabled teenager
27/05/2005 Ethics workshop
18/05/2005 Workshop on ethics with new accessed EU countries
17/05/2005 IF voices its opposition to European Parliament report on food fortification
14/03/2005 IF voices its opposition to European Parliament report on food fortification
13/02/2005 Bosk: No legal or policy-making room for active euthanasia
21/01/2005 Revolutionary advance in medicine
29/11/2004 LIESJE
26/11/2004 Supporting disabled adults as parents
24/11/2004 IF African workshop: welcome word Pierre Mertens
29/10/2004 Disabled people’s costs of living in UK: ‘More than you would think’
13/09/2004 crossing Borders - opening speech - Eli Skattebu
8/09/2004 Emily's letter to the President
8/09/2004 Crossing Borders - Opening Speech
6/09/2004 IF award 2004
6/09/2004 Closing Speech - Pierre Mertens - at Crossing Borders
6/06/2004 opening speech Pierre Mertens at the concert
29/05/2004 Friends Of IF
5/04/2004 ETV as the primary treatment of Hydrocephalus

subscribe to our newsletter



IF Neurosurgery

Flour Fortification Initiative

Council of Europe

Include Everybody

European Year of Intercultural Dialogue

IFSBH Annual Report 2007

Global Partnership for Disability and Development


International Disability and Development Consortium