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International Federation for Spina Bifida and Hydrocephalus
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IF international ListServ


The IF international ListServ is an eCommunity for adults with Spina Bifida and/or Hydrocephalus (SB/H) from all over the world. It is funded by an unrestricted educational grant from Pfizer. You can use the list to share information, to correspond and work together on issues of common interest or to advise IF on any issue relevant to adults with SB/H.

The following information has been provided to allow the ListServ to operate in the best way possible. Please save a copy for your records as you may find it helpful in the future.

Add yourself to the ListServ:
Send an email to jon.burke@ifglobal.org. Leave the subject line and the body blank.

Send a message to the ListServ:
In order to post a message to the ListServ, please send an email to international@lists.sbaa-communities.org.

Remove yourself from the ListServ:
If you want to be removed from the ListServ, send a blank email to international-off@lists.sbaa-communities.org. Leave the subject line and the body blank.

General ListServ Etiquette:

So that we are all able to get the best out of using the list, you should always make sure that

  • You remember there are people signed up to this list from all over the world. That means it is very important to respect each others experiences, cultures and views.
  • You remember there are many people on the list who do not speak English as a first language BUT it is the language most non English speakers from different countries use to communicate with each other. Therefore please use English when sending a message to the ListServ. IF apologises if this puts some people off sending messages to the list but at the moment automatic translation is not possible.
  • All messages sent to the ListServ must be about Spina Bifida or Hydrocephalus or related topics only.
  • You do not post brief responses such as "I agree" or “Thank You” to the list because it creates unnecessary traffic in our email inboxes.
  • You say what your message is about in the subject line.
  • You do not use foul language or insulting remarks.
  • You do not post comments meant for specific individuals such as "how are you", "fine thanks", and "what's new" to the ListServ. They should be sent directly to the email address of the person the comment is intended for.  In short, if it is not meant for everyone, it should NOT be posted to the list.
  • You should keep messages brief and to the point. If you have a long document, post a description on the ListServ and offer to send it to those who are interested.
  • If you have a problem with some of the messages, email the list moderators or the person sending the messages. Refrain from sending complaints to the entire group.
  • Avoid using all capital letters in your messages. This is considered the same as SHOUTING and is not appreciated by others.
  • Most importantly, remember that nothing is ever confidential or private when using the web to communicate. Double-check your message before sending. If it contains personal or confidential information it might be best to use another method.
  • Anyone who does not stick to these rules will initially be contacted directly, off the list, and asked to ensure they observe the rules in future. If they continue to ignore the rules after that they could ultimately be removed from the ListServ.


More articles

7/02/2008 IF international ListServ
3/09/2008 Medicina e Persona Rimini Meeting 2008
2/06/2008 Endoscope installation at Hue Hospital, Vietnam
2/03/2008 Dutch Health Council advices on optimal use of Folic Acid
12/02/2008 IF visit to the Ugandan Parliament
11/02/2008 Introducing Olivia Nakato
12/02/2008 The gift of Deep Experience
11/02/2008 Introducing Rebecca Nakitto
11/02/2008 IPATH training in M'bale, Uganda
17/01/2008 AVSI and IF cooperate in Uganda
12/11/2007 IF-FFI meeting on mandatory fortification
25/10/2007 Luis Quaresma (Portugal) reports from Angola
25/06/2007 Endoscopic Third Ventriculostomy in progress
21/06/2007 Africa and "our" children
31/05/2007 Stories from Africa
11/05/2007 Clean up awareness campaign organized by SHAK - Nairobi
9/05/2007 5th International NTD Conference
6/04/2007 IF training visit in Vietnam
6/04/2007 Training in the Go Vap orphanage
2/04/2007 WHO seeks disability experts through IF
20/02/2007 PhD study on the effect of Spina Bifida on parents
18/01/2007 Home visits in Moshi area
9/01/2007 Trolls and spina bifida
4/01/2007 The Independent Living Center and Munishwor Society of Katmandu, Nepal, established a special contest
22/12/2006 not feeling alone…
13/12/2006 UN adopts Disability Convention
26/10/2006 Proposal for mandatory fortification of bread approved
25/10/2006 Conference Medicina e Persona, Italy
19/10/2006 article Clementina Isimbaldi for the Italian newspaper Libero
16/10/2006 Dear Friends of CCBRT
10/10/2006 without creating an NGO island…
10/10/2006 Short report from Poland
10/10/2006 Preventing Spina Bifida through Folic Acid Flour Fortification
4/09/2006 Dutch physicians succeeded in bringing back feeling in penis
23/08/2006 Elections are Congo's hope
7/07/2006 Resolution on active termination of life of newborn children with impairements and the right to live
12/04/2006 UK wants to improve folate status young women
4/04/2006 Update on IF's Campaign for Mandatory Food Fortification
31/03/2006 CIC treatment in Vietnam
30/03/2006 Update on the IF Conference in Helsinki
28/02/2006 1st national update on Spina Bifida and Hydrocephalus
19/01/2006 New study comparing two hydrocephalus treatments in Africa
18/01/2006 IF President to attend First National Conference in India
18/01/2006 IF lobbies Irish MEP for mandatory flour fortification
19/12/2005 IF and its Dutch member BOSK lobby against the “Groningen protocol”
19/12/2005 Oldest person with spina bifida
15/11/2005 IF's African workshop
10/11/2005 Ireland's IASBAH and IF towards European Food Fortification
10/11/2005 Meeting with Dutch physicians de Jong and Kompanje
24/10/2005 BBC Radio 4 programme on spina bifida in Guatemala
18/10/2005 NEW Publication from the Spina Bifida Association
12/10/2005 Tom Baroch reports on the situation in Guatemala
28/09/2005 Training in Thailand
28/09/2005 Second conference: "Building Bridges"
28/09/2005 A National Live Satellite Broadcast and Web Cast
28/09/2005 WHO resolution
28/09/2005 Meet Up!
28/09/2005 New staff in the Brussels IF-office
4/08/2005 July 27, 2005: Adult day
15/07/2005 IF adopts two resolutions to the United Nations
12/07/2005 32nd SBAA and 16th IF Conference, Minneapolis, 26-29 June 2005
13/06/2005 A long process to become adult for disabled teenager
27/05/2005 Ethics workshop
18/05/2005 Workshop on ethics with new accessed EU countries
17/05/2005 IF voices its opposition to European Parliament report on food fortification
14/03/2005 IF voices its opposition to European Parliament report on food fortification
13/02/2005 Bosk: No legal or policy-making room for active euthanasia
21/01/2005 Revolutionary advance in medicine
29/11/2004 LIESJE
26/11/2004 Supporting disabled adults as parents
24/11/2004 IF African workshop: welcome word Pierre Mertens
29/10/2004 Disabled people’s costs of living in UK: ‘More than you would think’
13/09/2004 crossing Borders - opening speech - Eli Skattebu
8/09/2004 Emily's letter to the President
8/09/2004 Crossing Borders - Opening Speech
6/09/2004 IF award 2004
6/09/2004 Closing Speech - Pierre Mertens - at Crossing Borders
6/06/2004 opening speech Pierre Mertens at the concert
29/05/2004 Friends Of IF
5/04/2004 ETV as the primary treatment of Hydrocephalus

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