Conecciones

Organizaciónes para Espina Bifida e Hidrocefalia Argentina Asociación Para la Espina Bífida e Hidrocefalia (APEBI) http://www.apebi.org.ar Australia Australian Spina Bifida & Hydrocephalus Association (ASBHA) http://www.asbha.org.au Spina Bifida Foundation of Victoria http://www.sbfv.org.au/ The Northcott society in Australia http://www.northcott.org.au The Spina Bifida and Hydrocephalus Assocation of South Australia http://www.spinabifida.asn.au SBH Queensland  http://www.spinabifida.org The Spina Bifida Association of Western Australia http://www.sbawa.asn.au Austria Spina Bifida und Hydrocephalus Österreich (SB&HÖ) http://www.sbho.at/ Belgium Vlaamse Vereniging voor Spina Bifida en Hydrocephalus vzw (VSH) http://www.spinabifida.be Association Spina Bifida Belge Francophone (ASBBF) http://www.asbbf.be  http://www.vitamineb9.be Brazil Associação de Espinha Bífida e Hidrocefalia do Rio de Janiero (AEBH) http://planeta.terra.com.br/saude/aebh Canada Spina Bifida and Hydrocephalus Association of Canada (SBHAC) http://www.sbhac.ca/ Spina Bifida and Hydrocephalus Association of Quebec  http://www.spina.qc.ca/en/index_en.htm Association de spina-bifida et d'hydrocéphalie de la région de Montréal Spina Bifida and Hydrocephalus Association of British Columbia (SBHABC) http://www.sbhabc.org/ Spina Bifida and Hydrocephalus Association of Nova Scotia (SBHANS) Spina Bifida and Hydrocephalus Association of Ontario (SBHAO) http://www.sbhao.on.ca/ Spina Bifida and Hydrocephalus Association of Southern Alberta (SBASA) http://www3.telus.net/public/omuir/About/index.htm Spina Bifida and Hydrocephalus Association of Northern Alberta (SBHANA) http://www.telusplanet.net/public/sbhana/ Denmark Rygmarvsbrokforeningen af 1988 http://www.rygmarvsbrokforeningen.dk Finland Suomen CP-liitto ry http://www.cp-liitto.fi France Fédération Française des Associations du Spina Bifida (FFASB) http://www.spinabifida.fr Germany Arbeitsgemeinschaft Spina Bifida und Hydrocephalus (ASBH) http://www.asbh.de Guatemala Asociación Guatemalteca de Espina Bífida India Indian Spina Bifida Association (ISBA)  http://indiaspinabifidaassociation.org  Spina Bifida Support Group http://www.spinabifidaclinic.in Indonesia Komunitas Spina Bifida Indonesia http://www.spinabifida.cjb.net Ireland Irish Association for Spina Bifida and Hydrocephalus (IASBAH) http://www.iasbah.ie/ Italy Federazione Associazioni Italiane Spina Bifida e Idrocefalo (FAISBI) http://www.faisbi.it Genitori Associati Spina Bifida Italia (GASBI) http://www.gasbi.it Japan Spina Bifida Association of Japan Jersey The Jersey Association for Spina Bifida & Hydrocephalus (JASBAH) http://www.jasbah-online.org/Defaultx.html Luxembourg Association pour le Spina Bifida a.s.b.l. http://www.info-handicap.lu/spinabifida/index.html the Netherlands BOSK Work Group Spina Bifida & Hydrocephalus http://www.bosk.nl Norway Ryggmargsbrokk- og hydrocephalusforeningen http://www.ryggmargsbrokk.org Poland Stowarzyszenie Chorych z Przepukliną Oponowo-Rdezeniową R.P. (ASBP) http://spinabifida.w.interia.pl Portugal Associação Spina Bifida e Hidrocefalia de Portugal (ASBIHP) http://www.asbihp.rcts.pt Scotland  Scottish Spina Bifida Association (SSBA) http://www.ssba.org.uk Slovakia Slovenská spoločnosť pre spina bifida a/alebo hydrocefalus, o.z. http://www.sbah.sk Spain Federación Española de Asociaciones de Espina Bífida e Hidrocefalia (FEBHI) http://www.febhi.org Asociacion de Padres con Hijos Espina Bifida (APHEB) http://www.gencat.es/entitats/apafeb.htm Federació D’Espina Bífida I Hidrocefàlia Comunitat Valenciana http://www.terra.es/personal/avesbi Federanción de Asociaciones de Espina Bífida de Andalucía distrito Espina bífida http://www.espinabifida.com Sweden RBU http://www.rbu.se Switzerland Schweizerische Vereinigung Spina Bifida und Hydrocephalus (SBH) http://www.spina-hydro.ch Turkey Spina Bifida Derneği http://med.ege.edu.tr/~spina/ Spina Bifida Dernegi Ege Universitesi Tip Fakultesi Cocuk Cerrahisi AD  United Kingdom Association for Spina Bifida and Hydrocephalus (ASBAH) http://www.asbah.org/ USA Spina Bifida Association of America (SBAA) http://www.sbaa.org/ Hydrocephalus Association http://www.hydroassoc.org/ Colorado Spina Bifida Association http://www.coloradospinabifida.org Venezuela Asociación Venezolana de la Espina Bífida http://www.aveb.com.ve

links relacionales: Espina Bifida e Hidrocefalia Estonian Chamber of Disabled People - www.epikoda.ee Support group for people with spina bifida - alt.support.spina-bifida   Hydrocephalus Foundation - aims to contribute emotional support to people with hydrocephalus and their family. Pregnancy and Maternal Hydrocephalus Database Fetal Diagnosis and Therapy at Vanderbilt University Ryans Page - Ryan was born with hydrocephalus at 23 weeks. Website for adolescents with spina bifida and their families -http://www.adolescentservices.net    http://www.cocemfe.es - Confederación Coordinadora Estatal de Minusválidos Físicos de España http://www.caritas.es - Cáritas Española http://www.cepes.es - La Confederación Empresarial Española de Economía Social (CEPES) www.spinabifidaitalia.it - Italian website dedicated to spina bifida

Ácido fólico http://www.cdc.gov/ncbddd/folicacid/default.htm

Discapacidad - General European Disability Forum - http://www.edf-feph.org RADAR - Royal Association for Disability and Rehabilitation Disability Now - UK's most comprehensive archive of disability information Disability Net http://www.edfwomen.org.uk - UK Disability Forum for European Affairs (UKDFfEA) Women's Committee http://www.women.gov.au - Australian Government services for women (with link to women and disability) http://www.disabilityworld.org - international magazine of disability news and views, published in English and Spanish (only on the web) http://www.un.org/esa/socdev/enable/ - the UN – persons with disabilities homepage http://www.un.org/esa/socdev/enable/dis50y00.htm - Persons with Disabilities: Fifty Years of Progress http://www.kennedykrieger.org - The Kennedy Krieger Institute Toys for children with disabilities - lots of toys for you to make http://www.disabledunited.com - included on the site is a unique Friends and Dating facility, chat room and message forums Reachout Magazine - meeting place for people with disabilities (includes a live chat area) http://www.lookingglass.org - a community non-profit organisation which emerged from the disability independent movement Wheelbase Information - about wheelchair sports in Great Britain Baxley Media Group - videos on disabilities and special education, also a range of videos concerning health and human relations Self Help and Support Groups - guide to groups in the UK and overseas Accessible Vacation Home Exchange - free service by the Institute on Independent Living Information on health and social services - for the residents of the London Borough of Wandsworth Institute on Independent Living - homepage http://www.surgerydoor.co.uk - UK Health Portal http://www.hemihelp.org.uk - provides information to children with hemiplegia and their families http://www.disabledinfo.com - provides information for disabled people, their families and carers, who are looking for help, advice or shopping requirements Skill - National Bureau for Students with Disabilities: promotes equality of opportunity for disabled people in post 16 education, training and employment A resource site - Special Educational Needs Information: website for teachers of children with special educational needs Kingston Special Needs Project Indie - The Integrated Network of Disability Information & Education: a directory of disability information on the internet Disability related web sites Ability - lots of links Healthlinkusa - information on a wide range of health links DisabilityWorld  - a lot of information about disability sites Inclusion International - a global federation of family-based organizations advocating for the human rights of people with intellectual disabilities worldwide Healthlink worldwide www.handicheck.net - Dutch website with a variety of articles and news items on special computer aids for amongst others people with a mobility disorder

Enlacos Paz Holandesa Lilianefonds CCBRT - Comprehensive Community Based Rehabilitation Tanzania  WHO CBM CURE