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International Federation for Spina Bifida and Hydrocephalus
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International Federation for Spina Bifida and Hydrocephalus - Homepage

Conecciones

 

Conecciones

Organizaciónes para Espina Bifida e Hidrocefalia

Argentina
Asociación Para la Espina Bífida e Hidrocefalia (APEBI)
http://www.apebi.org.ar

Australia
Australian Spina Bifida & Hydrocephalus Association (ASBHA)
http://www.asbha.org.au

Spina Bifida Foundation of Victoria
http://www.sbfv.org.au/

The Northcott society in Australia
http://www.northcott.org.au

The Spina Bifida and Hydrocephalus Assocation of South Australia
http://www.spinabifida.asn.au

SBH Queensland 
http://www.spinabifida.org

The Spina Bifida Association of Western Australia
http://www.sbawa.asn.au

Austria
Spina Bifida und Hydrocephalus Österreich (SB&HÖ)
http://www.sbho.at/

Belgium
Vlaamse Vereniging voor Spina Bifida en Hydrocephalus vzw (VSH)
http://www.spinabifida.be

Association Spina Bifida Belge Francophone (ASBBF)
http://www.asbbf.be 
http://www.vitamineb9.be

Brazil
Associação de Espinha Bífida e Hidrocefalia do Rio de Janiero (AEBH)
http://planeta.terra.com.br/saude/aebh

Canada
Spina Bifida and Hydrocephalus Association of Canada (SBHAC)
http://www.sbhac.ca/

Spina Bifida and Hydrocephalus Association of Quebec 
http://www.spina.qc.ca/en/index_en.htm

Association de spina-bifida et d'hydrocéphalie de la région de Montréal

Spina Bifida and Hydrocephalus Association of British Columbia (SBHABC)
http://www.sbhabc.org/

Spina Bifida and Hydrocephalus Association of Nova Scotia (SBHANS)

Spina Bifida and Hydrocephalus Association of Ontario (SBHAO)
http://www.sbhao.on.ca/

Spina Bifida and Hydrocephalus Association of Southern Alberta (SBASA)
http://www3.telus.net/public/omuir/About/index.htm

Spina Bifida and Hydrocephalus Association of Northern Alberta (SBHANA)
http://www.telusplanet.net/public/sbhana/

Denmark
Rygmarvsbrokforeningen af 1988
http://www.rygmarvsbrokforeningen.dk

Finland
Suomen CP-liitto ry
http://www.cp-liitto.fi

France
Fédération Française des Associations du Spina Bifida (FFASB)
http://www.spinabifida.fr

Germany
Arbeitsgemeinschaft Spina Bifida und Hydrocephalus (ASBH)
http://www.asbh.de

Guatemala
Asociación Guatemalteca de Espina Bífida

India
Indian Spina Bifida Association (ISBA) 
http://indiaspinabifidaassociation.org 

Spina Bifida Support Group
http://www.spinabifidaclinic.in

Indonesia
Komunitas Spina Bifida Indonesia
http://www.spinabifida.cjb.net

Ireland
Irish Association for Spina Bifida and Hydrocephalus (IASBAH)
http://www.iasbah.ie/

Italy
Federazione Associazioni Italiane Spina Bifida e Idrocefalo (FAISBI)
http://www.faisbi.it

Genitori Associati Spina Bifida Italia (GASBI)
http://www.gasbi.it

Japan
Spina Bifida Association of Japan

Jersey
The Jersey Association for Spina Bifida & Hydrocephalus (JASBAH)
http://www.jasbah-online.org/Defaultx.html

Luxembourg
Association pour le Spina Bifida a.s.b.l.
http://www.info-handicap.lu/spinabifida/index.html

the Netherlands
BOSK Work Group Spina Bifida & Hydrocephalus
http://www.bosk.nl

Norway
Ryggmargsbrokk- og hydrocephalusforeningen
http://www.ryggmargsbrokk.org

Poland
Stowarzyszenie Chorych z Przepukliną Oponowo-Rdezeniową R.P. (ASBP)
http://spinabifida.w.interia.pl

Portugal
Associação Spina Bifida e Hidrocefalia de Portugal (ASBIHP)
http://www.asbihp.rcts.pt

Scotland 
Scottish Spina Bifida Association (SSBA)
http://www.ssba.org.uk

Slovakia
Slovenská spoločnosť pre spina bifida a/alebo hydrocefalus, o.z.
http://www.sbah.sk

Spain
Federación Española de Asociaciones de Espina Bífida e Hidrocefalia (FEBHI)
http://www.febhi.org

Asociacion de Padres con Hijos Espina Bifida (APHEB)
http://www.gencat.es/entitats/apafeb.htm

Federació D’Espina Bífida I Hidrocefàlia Comunitat Valenciana
http://www.terra.es/personal/avesbi

Federanción de Asociaciones de Espina Bífida de Andalucía

distrito Espina bífida
http://www.espinabifida.com

Sweden
RBU
http://www.rbu.se

Switzerland
Schweizerische Vereinigung Spina Bifida und Hydrocephalus (SBH)
http://www.spina-hydro.ch

Turkey
Spina Bifida Derneği
http://med.ege.edu.tr/~spina/

Spina Bifida Dernegi Ege Universitesi Tip Fakultesi Cocuk Cerrahisi AD 

United Kingdom
Association for Spina Bifida and Hydrocephalus (ASBAH)
http://www.asbah.org/

USA
Spina Bifida Association of America (SBAA)
http://www.sbaa.org/

Hydrocephalus Association
http://www.hydroassoc.org/

Colorado Spina Bifida Association
http://www.coloradospinabifida.org

Venezuela
Asociación Venezolana de la Espina Bífida
http://www.aveb.com.ve

links relacionales: Espina Bifida e Hidrocefalia

Estonian Chamber of Disabled People - www.epikoda.ee

Support group for people with spina bifida - alt.support.spina-bifida  

Hydrocephalus Foundation - aims to contribute emotional support to people with hydrocephalus and their family.

Pregnancy and Maternal Hydrocephalus Database

Fetal Diagnosis and Therapy at Vanderbilt University

Ryans Page - Ryan was born with hydrocephalus at 23 weeks.

Website for adolescents with spina bifida and their families -http://www.adolescentservices.net   

http://www.cocemfe.es - Confederación Coordinadora Estatal de Minusválidos Físicos de España

http://www.caritas.es - Cáritas Española

http://www.cepes.es - La Confederación Empresarial Española de Economía Social (CEPES)

www.spinabifidaitalia.it - Italian website dedicated to spina bifida

Ácido fólico
http://www.cdc.gov/ncbddd/folicacid/default.htm

Discapacidad - General

European Disability Forum - http://www.edf-feph.org

RADAR - Royal Association for Disability and Rehabilitation

Disability Now - UK's most comprehensive archive of disability information

Disability Net

http://www.edfwomen.org.uk - UK Disability Forum for European Affairs (UKDFfEA) Women's Committee

http://www.women.gov.au - Australian Government services for women (with link to women and disability)

http://www.disabilityworld.org - international magazine of disability news and views, published in English and Spanish (only on the web)

http://www.un.org/esa/socdev/enable/ - the UN – persons with disabilities homepage

http://www.un.org/esa/socdev/enable/dis50y00.htm - Persons with Disabilities: Fifty Years of Progress

http://www.kennedykrieger.org - The Kennedy Krieger Institute

Toys for children with disabilities - lots of toys for you to make

http://www.disabledunited.com - included on the site is a unique Friends and Dating facility, chat room and message forums

Reachout Magazine - meeting place for people with disabilities (includes a live chat area)

http://www.lookingglass.org - a community non-profit organisation which emerged from the disability independent movement

Wheelbase Information - about wheelchair sports in Great Britain

Baxley Media Group - videos on disabilities and special education, also a range of videos concerning health and human relations

Self Help and Support Groups - guide to groups in the UK and overseas

Accessible Vacation Home Exchange - free service by the Institute on Independent Living

Information on health and social services - for the residents of the London Borough of Wandsworth

Institute on Independent Living - homepage

http://www.surgerydoor.co.uk - UK Health Portal

http://www.hemihelp.org.uk - provides information to children with hemiplegia and their families

http://www.disabledinfo.com - provides information for disabled people, their families and carers, who are looking for help, advice or shopping requirements

Skill - National Bureau for Students with Disabilities: promotes equality of opportunity for disabled people in post 16 education, training and employment

A resource site - Special Educational Needs Information: website for teachers of children with special educational needs

Kingston Special Needs Project

Indie - The Integrated Network of Disability Information & Education: a directory of disability information on the internet

Disability related web sites

Ability - lots of links

Healthlinkusa - information on a wide range of health links

DisabilityWorld  - a lot of information about disability sites

Inclusion International - a global federation of family-based organizations advocating for the human rights of people with intellectual disabilities worldwide

Healthlink worldwide

www.handicheck.net - Dutch website with a variety of articles and news items on special computer aids for amongst others people with a mobility disorder

Enlacos

Paz Holandesa

Lilianefonds

CCBRT - Comprehensive Community Based Rehabilitation Tanzania 

WHO

CBM

CURE

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IF Neurosurgery

Flour Fortification Initiative

Council of Europe

Include Everybody

European Year of Intercultural Dialogue

IFSBH Annual Report 2007

Global Partnership for Disability and Development

Folsaeure

International Disability and Development Consortium