english español français nederlands português italiano
International Federation for Spina Bifida and Hydrocephalus
home search sitemap contact disclaimer
International Federation for Spina Bifida and Hydrocephalus - Homepage

Links

 

Links

IF related websites

Spina Bifida and Hydrocephalus associations

Spina Bifida and Hydrocephalus related links

Chat, support and discussion groups

Disability - General

IF related websites

IF Knowledge Network
Find and submit information about Spina Bifida and/or Hydrocephalus

IF Conference weblog
Information about IF's 19th Conference "Drawing Smiles - Towards Adulthood" in Lisbon, Portugal, and SBAA's 35th conference

Spina Bifida and Hydrocephalus associations

Argentina
Asociación Para la Espina Bífida e Hidrocefalia (APEBI)
http://www.apebi.org.ar

Algeria
Association des malades de spina bifida de Mostagenem
http://www.spinabifida27.unblog.fr

Australia
Australian Spina Bifida & Hydrocephalus Association (ASBHA)
http://www.asbha.org.au

Spina Bifida Foundation of Victoria
http://www.sbfv.org.au/

The Northcott society in Australia
http://www.northcott.org.au

The Spina Bifida and Hydrocephalus Assocation of South Australia
http://www.spinabifida.asn.au

SBH Queensland 
http://www.spinabifida.org

The Spina Bifida Association of Western Australia
http://www.sbawa.asn.au

Austria 
Spina Bifida und Hydrocephalus Österreich (SB&HÖ)
http://www.sbho.at/

Belgium 
Vlaamse Vereniging voor Spina Bifida en Hydrocephalus vzw (VSH)
http://www.spinabifida.be

Association Spina Bifida Belge Francophone (ASBBF)
http://www.asbbf.be 
http://www.vitamineb9.be

Brazil
Associação de Espinha Bífida e Hidrocefalia do Rio de Janiero (AEBH)
http://www.aebh.org/

Canada
Spina Bifida and Hydrocephalus Association of Canada (SBHAC)
http://www.sbhac.ca/

Spina Bifida and Hydrocephalus Association of Quebec 
http://www.spina.qc.ca/en/index_en.htm

Association de spina-bifida et d'hydrocéphalie de la région de Montréal

Spina Bifida and Hydrocephalus Association of British Columbia (SBHABC)
http://www.sbhabc.org/

Spina Bifida and Hydrocephalus Association of Nova Scotia (SBHANS)

Spina Bifida and Hydrocephalus Association of Ontario (SBHAO)
http://www.sbhao.on.ca/

Spina Bifida and Hydrocephalus Association of Southern Alberta (SBHASA)
http://www.sbhasa.ca/

Spina Bifida and Hydrocephalus Association of Northern Alberta (SBHANA)
http://www.sbhana.org/

Denmark
Rygmarvsbrokforeningen af 1988
http://www.rygmarvsbrokforeningen.dk

Finland
Suomen CP-liitto ry 
http://www.cp-liitto.fi

MeHyvät association/ Verevä-projekti
http://personal.inet.fi/yhdistys/mehyvat/

France
Fédération Française des Associations du Spina Bifida (FFASB)
http://www.spinabifida.fr

Germany
Arbeitsgemeinschaft Spina Bifida und Hydrocephalus (ASBH)
http://www.asbh.de

Guatemala
Asociación Guatemalteca de Espina Bífida
http://ebguatemala.blogia.com/

India
Indian Spina Bifida Association (ISBA)
http://indiaspinabifidaassociation.org 

Indonesia
Komunitas Spina Bifida Indonesia

Ireland
Irish Association for Spina Bifida and Hydrocephalus (IASBAH) 
http://www.iasbah.ie/

Italy
Federazione Associazioni Italiane Spina Bifida e Idrocefalo (FAISBI)
http://www.faisbi.it

Associazione Spina Bifida Italia (ASBI) 
http://www.asbi.info/

Japan
Spina Bifida Association of Japan

Jersey
The Jersey Association for Spina Bifida & Hydrocephalus (JASBAH)
http://www.jasbah.org

Luxembourg
Association pour le Spina Bifida a.s.b.l. 
http://www.info-handicap.lu/spinabifida/index.html

the Netherlands
BOSK Work Group Spina Bifida & Hydrocephalus
http://www.bosk.nl

Northern Ireland
Northern Ireland Association for Spina Bifida and Hydrocephalus
www.spinabifida-ni.org

Norway
Ryggmargsbrokk- og hydrocephalusforeningen
http://www.ryggmargsbrokk.org

Poland 
Stowarzyszenie Chorych z Przepukliną Oponowo-Rdezeniową R.P. (ASBP)
http://spinabifida.w.interia.pl

Portugal
Associação Spina Bifida e Hidrocefalia de Portugal (ASBIHP)
http://www.asbihp.org

Scotland 
Scottish Spina Bifida Association (SSBA) 
http://www.ssba.org.uk

Slovakia
Slovenská spoločnosť pre spina bifida a/alebo hydrocefalus, o.z.
http://www.sbah.sk

Spain
Federación Española de Asociaciones de Espina Bífida e Hidrocefalia (FEBHI)
http://www.febhi.org

Asociacion de Padres con Hijos Espina Bifida (APHEB)
http://www.gencat.net/entitats/apafeb.htm

Federació D’Espina Bífida I Hidrocefàlia Comunitat Valenciana 
http://www.espinabifida-fundacion.org/febhcv.html

Federación de Asociaciones de Espina Bífida de Andalucía
http://www.faeba.es/guia

distrito Espina bífida
http://jdelpino.iespana.es/

Sweden
RBU
http://www.rbu.se

Switzerland 
Schweizerische Vereinigung Spina Bifida und Hydrocephalus (SBH)
www . spina-hydro .ch

Turkey
Spina Bifida Derneği 

Spina Bifida Dernegi Ege Universitesi Tip Fakultesi Cocuk Cerrahisi AD 

United Kingdom
Association for Spina Bifida and Hydrocephalus (ASBAH)
http://www.asbah.org/

USA
Spina Bifida Association of America (SBAA)
http://www.sbaa.org/

Hydrocephalus Association
http://www.hydroassoc.org/

Colorado Spina Bifida Association
http://www.coloradospinabifida.org

Venezuela
Asociación Venezolana de la Espina Bífida

Spina Bifida and Hydrocephalus related links

The Children and Adults with Spina Bifida website - the focus of this site is myelomeningocele, the most severe form of spina bifida

Spina Bifida Research Bibliography

Greet Mommen - medical illustrations: "Scientific illustrations on Spina Bifida"

Right under my nose - A story for children with Spina Bifida (© 2006 Childrens Hospital Los Angeles)

stonian Chamber of Disabled People - www.epikoda.ee

Support group for people with spina bifida - alt.support.spina-bifida  

Hydrocephalus Foundation - aims to contribute emotional support to people with hydrocephalus and their family.

Ryans Page - Ryan was born with hydrocephalus at 23 weeks.

http://www.cocemfe.es - Confederación Coordinadora Estatal de Minusválidos Físicos de España

http://www.caritas.es - Cáritas Española

http://www.cepes.es - La Confederación Empresarial Española de Economía Social (CEPES)

http://www.spinabifidaitalia.it - Italian website dedicated to spina bifida

 

Chat, support and discussion groups

Scandinavian hydrocephalus chat group -http://uk.groups.yahoo.com/group/hydrochat

US based support group for parents raising children with spina bifida -  www.spinabifidasupport.com

Brazilian Spina Bifida and Hydrocephalus discussion group - http://br.groups.yahoo.com/group/listadaespinhabifida/

 

Disability - General

European Disability Forum - http://www.edf-feph.org

PACER Center - Champions for children with disabilities

RADAR - Royal Association for Disability and Rehabilitation

HealthWrights is a non-profit organization committed to advancing the health, basic rights, social equality, and self-determination of disadvantaged persons and groups

The Politics of Health Knowledge Network is a forum for the exploration of the impact of political decisions on health.

Disability Now - UK's most comprehensive archive of disability information

Disability Net

http://www.edfwomen.org.uk - UK Disability Forum for European Affairs (UKDFfEA) Women's Committee

http://www.women.gov.au - Australian Government services for women (with link to women and disability)

http://www.disabilityworld.org - international magazine of disability news and views, published in English and Spanish (only on the web)

http://www.un.org/esa/socdev/enable/ - the UN – persons with disabilities homepage

http://www.un.org/esa/socdev/enable/dis50y00.htm - Persons with Disabilities: Fifty Years of Progress

http://www.kennedykrieger.org - The Kennedy Krieger Institute

Toys for children with disabilities - lots of toys for you to make

http://www.disabledunited.com - included on the site is a unique Friends and Dating facility, chat room and message forums

Reachout Magazine - meeting place for people with disabilities (includes a live chat area) 

http://www.lookingglass.org - a community non-profit organisation which emerged from the disability independent movement

Baxley Media Group - videos on disabilities and special education, also a range of videos concerning health and human relations

Self Help and Support Groups - guide to groups in the UK and overseas

Accessible Vacation Home Exchange - free service by the Institute on Independent Living

Information on health and social services - for the residents of the London Borough of Wandsworth

Institute on Independent Living - homepage

http://www.surgerydoor.co.uk - UK Health Portal

http://www.hemihelp.org.uk - provides information to children with hemiplegia and their families

http://www.disabledinfo.com - provides information for disabled people, their families and carers, who are looking for help, advice or shopping requirements

Open Society Mental Health Initiative - In addition to highlighting best practices in community-based care, the site includes a comprehensive Resource Directory that provides information on a variety of topics related to mental health, intellectual disability and human rights.

Skill - National Bureau for Students with Disabilities: promotes equality of opportunity for disabled people in post 16 education, training and employment

A resource site - Special Educational Needs Information: website for teachers of children with special educational needs

Ability - lots of links

DisabilityWorld  - a lot of information about disability sites

Inclusion International - a global federation of family-based organizations advocating for the human rights of people with intellectual disabilities worldwide

Healthlink worldwide 

www.handicheck.net - Dutch website with a variety of articles and news items on special computer aids for amongst others people with a mobility disorder


 

subscribe to our newsletter

 

 

IF Neurosurgery

Flour Fortification Initiative

Council of Europe

Include Everybody

European Year of Intercultural Dialogue

IFSBH Annual Report 2007

Global Partnership for Disability and Development

Folsaeure

International Disability and Development Consortium