Active termination of life of newborn babies with spina bifida|
In 2005 the Dutch Groningen Protocol was published in the New England Journal of Medicine giving Dutch doctors the possibility to actively end the life of a newborn child with a 'severe' impairment. The protocol is based on 22 cases all concerning Spina Bifida.
BOSK, IF's Dutch member organisation, wrote a letter to the Dutch government opposing against the Groningen Protocol and the proposal to institute a specific committee to judge if doctors handled carefully. To read the English translation of this letter, click here.
IF also wrote a resolution on Active Termination of Life of Newborn Children with Spina Bifida and/or Hydrocephalus and the Right to Live. This document was unanimously adopted by IF's Annual General Meeting on 30 June 2006 in Helsinki.
At the same time, IF took the lead in drafting an EDF resolution on this matter concerning newborn children with all sort of disabilities. The EDF resolution on Active Termination of Life of Infants with Impairments and the Right to Live was adopted by the EDF Annual General Assembly in May 2006.
The right to live is also specifically stated in the UN Disability Convention which was adopted in December 2006.