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International Federation for Spina Bifida and Hydrocephalus
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International Federation for Spina Bifida and Hydrocephalus - Homepage

Introduction

Philosophy of the IF projects

Hydrocephalus in developing countries

Spina Bifida in developing countries

Research in developing countries

Partners and Parent groups

Evaluation of the IF projects

IF publications

Partners in development cooperation

 

Developing countries

Special literature

In collaboration with WHO, IF created a Guide for Mid-Level Rehabilitation Workers to Promote the Development of Infant and Young Children with Spina Bifida and/or Hydrocephalus. This guidebook can be requested at WHO/RHB/96.5 or downloaded in PDF format here

Disabled Village Children, a Guide for Community Health Workers, Rehabilitation Workers and Families. David Werner (published by the Hesperian Foundation, PO Box 11577, Berkeley, CA 94712-2577) http://www.dinf.ne.jp/doc/english/global/david/dwe002/dwe00201.html

Where Women Have No Doctor, a Health Guide for Women. A. Agust Burns, Ronnoe Lovich, Jane Maxwell, Katharine Shapiro. (published by the Hesperian Foundation, PO Box 11577, Berkeley, CA 94712-2577)

Children With Hydrocephalus & Spina Bifida in East Africa: can Family & Community Resources improve the Odds? M. Miles, Birmingham, UK. This paper was originally published in the journal Disability & Society (2002) Vol. 17, No. 6, pp. 643-658. Reprinted by permission of Carfax Publishing, Taylor & Francis Group, with slight revision.

Miles, M.  2006.  Children with spina bifida and hydrocephalus in Africa: can medical, family and community resources improve the life chances?” This much extended and revised article incorporates material from: M. Miles (2002) Children with hydrocephalus and spina bifida in East Africa: can family and community resources improve the odds? Disability & Society 17: 643-658, Carfax Publishing, Taylor & Francis. (The latter material is republished with permission.) The article can be downloaded in PDF format here.

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