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International Federation for Spina Bifida and Hydrocephalus
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International Federation for Spina Bifida and Hydrocephalus - Homepage

Introduction

Philosophy of the IF projects

Hydrocephalus in developing countries

Spina Bifida in developing countries

Research in developing countries

Partners and Parent groups

Evaluation of the IF projects

Special literature

Partners in development cooperation

 

Developing countries

IF publications

Providing correct information to parents and professionals is essential for good care of the child.

IF produced a series of leaflets to be used in developing countries in cooperation with several advisors.

An overview of available leaflets:

Hydrocephalus leaflet for parents (available in English, Spanish, Swahili, French, Bahasa Indonesian and Portuguese)

Spina Bifida leaflet for parents (English, Bahasa Indonesia)

- Shunting and Hydrocephalus: information for professionals and projects
  o Guidelines for the Management of Hydrocephalus and Spina Bifida (E)
  o Guidelines Hydrocephalus (E)
  o Strategy for Treatment of Hydrocephalus in Developing Countries (E, F, Sp)
  o IF statement use Chhabra shunt (E, F, Sp)
  o Protocol for Testing Shunt Valves (E, F, Sp)
  o List Basic Shunting Set (E)
  o Comparison of 1 year outcome for the Chhabra and Codman Hakin precision shunt systems in Uganda: a prospective study in 195 children – Dr B. Warf (E)
  o What has the Hydrocephalus work in Africa taught us? From etiology to treatment – Dr B. Warf (E)

Prevention of Hydrocephalus (presentations)
  o Prevention of Hydrocephalus in the Developing World: Neurosurgical perspective – Dr B. Warf (E)
  o Paediatric perspective: Is the IMCI approach adequate? – Dr Martina Oneko (E)

- ETV
  o Procedure Cleaning Endoscopes (E)
  o Hydrocephalus in Uganda: the predominance of infectious origin and primary management with endoscopic third ventriculostomy – Dr B. Warf (E)
  o Comparison of third ventriculostomy alone and in combination with choroids plexus cauterization in infants younger than 1 year of age: a prospective study in 550 African children – Dr B. Warf (E)
  o Warf BC, Campbell JW. Combined endoscopic third ventriculostomy and choroid plexus cauterization (ETV/CPC) as primary treatment of hydrocephalus for infants with myelomeningocele: Long-term results of a prospective intention to treat study in 115 African infants. (In press, Journal of Neurosurgery Pediatrics, November 2008)

Bladder management
  o Clean Intermittent Catherisation protocol + 3 follow up sheets
  o Booklet: Neurogenic bladder management (for nurses)
  o Presentations:
     • The voiding system – Dr Oneko
     • Neurogenic bladder dysfunction – Dr Verpoorten
     • The neurogenic bladder made easy – Dr Verpoorten
  o Booklet: The user guide to intermittent catherisation

Bowel Management
  o Booklet: Neurogenic bowel management (training booklet for nurses with guidelines on the bowel management programme)
  o The 6 pictures of the bowel (for teaching purposes)
  o Presentation: Bowel management – Dr Verpoorten

General health care and rehabilitation care for children with Spina Bifida and Hydrocephalus (lectures)
  o General health care of developing countries – Dr Oneko
  o Shunting, first step in life long care – Dr Verpoorten
  o Cognitive functions and early stimulation – R. Schoyen
  o Mobility problem and early stimulation of children with Hydrocephalus – R. Zulianelli
  o CP and Hydrocephalus – Dr Oneko
  o Epilepsy – Dr Oneko
  o Pressure wound management – Dr Mavura
  o Folic acid to mothers at risk – A. Jeruto

All lectures are only available in Powerpoint presentations. If you want to receive all presentations on a cd-rom, please contact the IF office.

General books:
  o WHO manual spina bifida in developing countries
  o Disabled Village Children
  o El niño campesino deshabilitado 
  o Living with Spina Bifida (English, Arabic)
  o Liesje, book by IF president Pierre Mertens (Dutch, French, Norwegian, Italian, Slovak)

Videos
  o At the end of the chain (English, Dutch)
  o Incontinence (English)

Policy documents IF work in developing countries
  o IF policy document for Parent Groups connected to IF projects (English) + structure parent groups

IF leaflets and protocols can be ordered by email: els.declerq@ifglobal.org

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