english español français nederlands português italiano
International Federation for Spina Bifida and Hydrocephalus
página inicial search mapa do site contactos disclaimer
International Federation for Spina Bifida and Hydrocephalus - Homepage

Introdução

Missão da IF

Objectivos da IF

Estrutura e Direcção

Organização do Mês

Relatórios Anuais

Conferências

IF Awards

Actividades

Agradecimentos

Patrocinios

Donativos

Job opportunities

 

Sobre a IF

Sócios

A IF tem dois tipos de membros, membros nacionais e membros de  suporte.

Os membros nacionais são associações nacionais de Spina Bifida e Hidrocefalia, que representam todos os grupos locais do seu  país na Assembleia Geral. Todos os paises da UE trabalham em conjunto na divisão euroepia da IF e são representados na EDF.Os membros de suporte estão abertos a qualquer pessoa envolvida com a Spina Bifida e Hidrocefalia. Grupos locais podem também solicitar ser membros de suporte.

Lista oficial de sócios da IF

Grupos de contacto para Spina Bifida e/o Hidrocefalia

Lista oficial de sócios da IF

Algeria
Association des malades de spina bifida de Mostagenem
villa no83 chemins de crètes (Mazagran)
Mostagenem 27120
Tel: +213 6 99 51 90 36
Fax: +213 45 23 68 41
LO: Mr. Tarik Elyahyaoui
E-mail: spinabifida27@yahoo.fr
http://www.spinabifida27.unblog.fr

Argentina
Asociación Para la Espina Bífida e Hidrocefalia (APEBI)
Victor Hugo 1547
Capital Federal  Republica Argentina
Tel: +54 11 4568 1088
Fax: +54 11 4482 2282
E-mail: apebi@apebi.org
E-mail: apebi@ciudad.com.ar
http://www.apebi.org.ar

Australia
Australian Spina Bifida & Hydrocephalus Association (ASBHA)
Spina Bifida Association of WA
The Niche
Suite B11, Aberdare Road
Nedlands 6009
Tel:  +61 8 9346 7520
Fax:  +61 8 9346 7520
LO: Mr. Robert W Talbott
E-mail: talbottmotorv8@optusnet.com.au
http://www.asbha.org.au

Austria
Spina Bifida und Hydrocephalus Österreich (SB&HÖ)
Postfach 88
A-1234 Vienna
Tel: +43  664 492 0727
Fax: +43 1 879 2920 200
LO: Mr. Martin Ziegler
E-mail: sbho@webb.co.at
E-mail: sbho@webb.at
http://www.sbho.at

Belgium
Vlaamse Vereniging voor Spina Bifida en Hydrocephalus vzw (VSH)
Spiegel 13
9860 Oosterzele-Scheldewindeke
Tel/Fax: +32 9 324 41 36
LO: Mr. Hugo van den Berghe
E-mail:  spinabifida@pandora.be
http://www.spinabifida.be

Brazil
Associaçao de Espinha Bifida e Hidrocefalia do Rio de Janeiro (AEBH)
Av. Prefeito Dulcídio Cardoso, 2.500 Bl 1 Apt. 606 -
Barra da Tijuca
22631- 051 Rio de Janeiro
Tel: +55 21 2439 4550
LO: Mrs. Rozangela Guimarães dos Santos
E-mail:  rozangelags@globo.com
http://www.aebh.org

Canada
Spina Bifida and Hydrocephalus Association of Canada (SBHAC) /
Association de spina-bifida et d'hydrocéphalie du Canada (ASBHC)
977-167 av. Lombard Avenue
Winnipeg, MB R3B OV3
Tel: +1 204  925 3650
Fax: +1 204 925 3654 
LO:  
E-mail:  spinab@mts.net
http://www.sbhac.ca

Denmark
Rygmarvsbrokforeningen af 1988
Egebaeksvej 28
DK- 8270 Højbjerg
Tel: +45 87 39 64 10
LO: Ms. Naja Andrup
E-mail: naj@newmail.dk
http://www.rygmarvsbrokforeningen.dk

Estonia
The Estonian MMC and HC Society
Tervise 28
13419 Tallinn
Tel: +37 2 697 4239
LO: Mrs. Ann Paal
E-mail: ann.paal@mail.ee

Finland
Suomen CP-liitto ry
Malmin Kauppatie 26
FI-00700 Helsinki
Tel: +358 9 5407 5414
Fax: +358 9 5407 5460
LO: Mrs. Tellervo Ojala
E-mail:  tellervo.ojala@cp-liitto.fi
http://www.cp-liitto.fi

France
Fédération Française des Associations du Spina Bifida (FFASB)
58 rue Pré Commun
31230 L'isle en Dodon
Tel/Fax: +33 56 179 40 78
LO: Mrs. Maryse Demolombe
E-mail: spinabifida.france@wanadoo.fr
http://www.spinabifida.fr

Germany
Arbeitsgemeinschaft Spina Bifida und Hydrocephalus (ASBH)
Münsterstrasse 13
D-44145 Dortmund
Tel: +49 231 86 1050-0
Fax: +49 231 86 1050-50
LO: Mr. Klaus Seidenstücker
E-mail: Klaus.Seidenstuecker@t-online.de
http://www.asbh.de

Guatemala
Asociación Guatemalteca de Espina Bífida (AGEB)
9a avenida 46-63 zona 12,
Monte María 3, Ciudad de Guatemala
Tel/Fax: +502 477 3375
LO: Mrs. Victoria Caceres de Sandoval
E-mail: ebguatemala@gmail.com

Ireland
Irish Association for Spina Bifida and Hydrocephalus (IASBAH)
Old Nangor Road
IE-Clondalkin, Dublin 22
Tel: +353 1 457 2329
Fax: +353 1 457 2328
LO: Mrs. Shani Williamson
E-mail: swilliamson@iasbah.ie
http://www.iasbah.ie

Italy
Federazione Associazioni Italiane Spina Bifida e Idrocefalo (FAISBI)
c/o Croce Verde A.P.M
Via San Vincenzo 25
20123 Milan
Cell phone: +39 338-8178359
LO:
E-mail:
http://www.faisbi.it 

Genitori Associati Spina Bifida Italia (GASBI)
Via Duomo 20
29020 Settima di Gossolengo (PC)
Tel/Fax: +39 523 557596
LO: Mr. Enzo Bellotto
EMail: ebellotto@gasbi.it
http://www.gasbi.it

Japan
Spina Bifida Association of Japan
Otaku Nakarokugo 4-13-10-214
Tokyo
Tel:  +81 45 943 9079
Fax:  +81 45 943 9145
LO: Mr. Akihiko Otsuka
E-mail:  akihiro@zoo.email.ne.jp

Luxembourg
Association pour le Spina Bifida a.s.b.l.
5 Chemin de Bousberg
Boîte Postale 20
L-7703 Bissen
Tel:  +352 859 188
Cell phone : +352 91 65 05 71
Fax:  +352 858 540
LO:  Mrs. Andrée Biltgen
E-mail: andree.biltgen@iha.lu
E-mail: andree.biltgen@cathol.lu
http://www.iha.lu/spinabifida/index.html

The Netherlands
BOSK Work Group Spina Bifida & Hydrocephalus
Postbus 3359
NL-3502 GJ Utrecht
Tel:  +31 30 2459090
Fax:  +31 2313872
LO: Mr. Teije Dijk
E-mail:  teijedijk@zonnet.nl
http://www.bosk.nl

Norway
Ryggmargsbrokk- og hydrocephalusforeningen
Verkstedet
Bergsalleen 21
0854 Oslo
Tel: +47 23 21 54 60
Fax: +47 23 21 54 69
LO: Ms. Kristin Edwardsen
E-mail:  kristin.edwardsen@chello.no
http://www.ryggmargsbrokk.org

Peru
Asociacion Peruana de Espina Bifida e Hidrocephalia Arequipa (APEBHI)
Av Jorge Chavez 527
Cerado Arequipa
Tel: 054-206720
LO: Mrs. Sara Valdivia de Monroy
E-mail: monroy.h@panam.com.pe

Asociación de Espina Bífida e Hidrocefalia del Perú (ASESBIH)
Av. La Capilla 1151, Dpto. 301
Rímac, Lima 25
Tel: 381-3527
Tel: 9999-5533
Fax: 433-6887
LO: Mr. Hugo Huapaya Rueda
E-mail: asesbih_peru@yahoo.com.ar
LO: Mrs. Delmy Pino Díaz
E-mail: info@asesbihperu.org
E-mail: delmy_pino@terra.com.pe
http://www.asesbihperu.org

Poland
Stowarzyszenie Chorych z Przepukliną Oponowo-Rdezeniową R.P. (ASBP)
ul. Żelazowej Woli 20/39A
20-853 Lublin
Tel: +48 81 744 75 18
Fax: +48 81 443 85 76
LO: Mr. Jaroslaw Maruszczak
E-mail: 4maruszki@neostrada.pl
http://spinabifida.w.interia.pl

Portugal
Associação Spina Bifida e Hidrocefalia de Portugal (ASBIHP)
Rua Botelho Vasconcelos
Lote 567 C/D
P-1900-637 Lisbon
Tel:  +351 185 9 6768
Fax:  +351 1859 6768
LO:  João Coelho
Email : joao.coelho@provedor-jus.pt
http://www.asbihp.org

Scotland
Scottish Spina Bifida Association (SSBA)
190 Queensferry Road
Edinburgh EH4 2BW
Tel:  +44 131 332 0743
Fax:  +44 131 343 3651
LO: Ms. Julie Snaddon
E-mail: julie@ssba.org.uk
http://www.ssba.org.uk

Slovakia
Slovenská spoločnosť pre spina bifida a/alebo hydrocefalus, o.z.
SNP 14
919 04 Smolenice
Tel: +421 905 323 465
Tel: +421 335 587 198
LO: Mr. Andrej Drdul
E-mail: drdulA@ba.zse.sk
http://www.sbah.sk

Spain
Federación Española de Asociaciones de Espina Bífida e Hidrocefalia (FEBHI)
Pechuán 14, local 6
28002 Madrid
Tel: +34 91 415 20 13
Cell phone: +34 650 39 63 41
Fax: +34 91 413 58 45
LO: Mr. Aitor Lascurain
E-mail: proyectos@febhi.org
http://www.febhi.org

Asociacion de Padres con Hijos Espina Bifida (A.P.H.E.B.)
Sorolla 10, Bloc B
E-Barcelona 35
Tel:  +34 93 428 2180
Fax:  +34 93 428 1934
LO: Mrs. Carmen Balboa
E-mail:  apafeb@telefonica.net
http://www.gencat.es/entitats/apafeb.htm

Sweden
RBU
Box 8026
S-104 20 Stockholm
Tel: +46 8 677 73 00
Fax: +46 8 677 73 09
LO: Mrs. Eva Toft
E-mail:  eva.toft@telia.com
http://www.rbu.se

Switzerland
Schweizerische Vereinigung Spina Bifida und Hydrocephalus (SBH)
Rue du Joliment 22
2525 Le Landeron
Tel:  +41 32 751 14 32
Fax: +41 32 751 14 32
LO: Mrs. Ines Boekholt
E-mail: inesboekholt@msn.com
http://www.spina-hydro.ch

Turkey
Spina Bifida Derneği
858 Sokak No: 9 Kat: 4/405
Paykoc ishani
35250 Konak / Izmir        
Tel: +90 232 4416567
Fax: +90 232 4821858
LO: Mr. Ibrahim Ulman
E-mail: ibrahim.ulman@ege.edu.tr
http://med.ege.edu.tr/spina/

UK
Association for Spina Bifida and Hydrocephalus (ASBAH)
42 Park Road
GB-Peterborough PE1 2UQ
Tel:  +44 1733 555988
Fax:  +44 1733 555985
LO: Mr. Jon Burke
E-mail: jon.burke50@ntlworld.com
http://www.asbah.org

USA
Spina Bifida Association of America (SBAA)
4590 MacArthur Boulevard NW
Suite 250
US-Washington DC 20007-4226
Tel: +1 202 944 3285
Fax: +1 202 944 3295
LO: Mr. Tom Baroch
E-mail: tbar1@rocketmail.com
http://www.sbaa.org

Grupos de contacto para Spina Bifida e/o Hidrocefalia

Belgium
Association Spina Bifida Belge Francophone (ASBBF)
Rue Neuve 70
4820 Dison
Tel/Fax: +32 87 351 218
LO: Mr. André Baguette
E-mail: info@asbbf.be
http://www.asbbf.be
http://www.vitamineb9.be

Bulgaria
Bulgarian Academy for Developmental Rehabilitation
at Dejstwije Slantschev Latsch-Foundation
Blvd. Russki 117
4000 Plovdiv
Tel: +359 32 270 872
Fax: +359 32 270 871
LO: Y. Piskova, MD
E-mail: intermed@netvisio.net

Burkina Faso
Anomalies prénatales et hydrocéphalies Burkinabe (APHB)
LO: Mrs. Claudine Flore Dangouri
E-mail: dangflorebf@yahoo.fr

Canada
Spina Bifida and Hydrocephalus Association of Quebec
Association de Spina-Bifida et d'Hydrocéphalie du Québec
5757, rue Decelles, bureau 425
Montréal (Québec)
H3S 2C3
Tel: +1 514 340-9019 or 1-800-567-1788 (province de Québec seulement)
Fax: +1 514 340-9109
E-mail: info@spina.qc.ca
http://www.spina.qc.ca

Chile
Santiago S.P.B. and Hydrocephalus Self-Help Group (ACHEB)
Almirante Acevedo 5086
Vicatura, Santiago de Chile
Tel: +56 2 2635428
LO: Mrs. Sophia Kummerlin
E-mail: sophiakummerlin@hotmail.com

ACHAB
Sierra Blancha 7557
Las Condez, Santiago
Tel: +56 2 224 2699
LO: Paz Rios
E-mail : p.rios@fordfound.org

Colombia
Fundación Mónica Uribe Por Amor
Carrera 77 # 33 a 73 Apt 402
Medellin
E-mail: monuribe@epm.net.co

Czech Republic
Eeska asociace pro spinu bifidu a hydrocefalus (EASBaH)
Kosmonautu 19
Brno
LO: Dr. Antonin Koneèny
E-mail: czasbah@hotmail.com

Djibouti
L’Association Spina-Bifida de Djibouti
Fax: +253 35 89 323
LO: Abdallah Khayari
E-mail: hadid.cfrt@intnet.dj

Dominican Republic
Dominican Republic Spina Bifida Support Group
Calle Apolo #50,
Urbanización Olimpo,
Santo Domingo
Tel: +809 488 7731
Tel: +809 262 27 82
LO: Mrs. Belkis Concepcion
E-mail: belkis.concepcion@unilever.com

Greece
Association Hellenique pour le Spina Bifida et l' Hydrocéphalie
3 Levido Str., N. Erythrea
P.O. Box 146 71
115 26 Athens
Tel: +30210/6203710
Fax: +30210/6205307
LO: Demy Kotta
E-mail: demyk64@hotmail.com

Honduras
Fundacion Hondurena de espina bifida e hidrocefalia (FUNHDESHI)
Instituto de neurosciencias
Colonia tepeyac calle Yoro. Edificio materdei P.B Tegucigalpa
HONDURAS C.A
Tel/Fax: (504) 239-4954/ 239-4964
E-mail: funhdeshi@yahoo.com

Hong Kong
The childhood Spina Bifida Support Group of Hong Kong
G/F Wang Lai House
Wang Tau Hom Estate
Kowloon
Tel: +852 2794 3010
Fax: +852 2338 4820
LO: Mr. Eddie, Chan Kit Leung
E-mail: threesun@yahoo.com

India
Indian Spina Bifida Association (ISBA)
G-14, C-Scheme
Jaipur 302001
LO: Shantanu jindel
E-mail: C_jindel@datainfosys.net
http://indiaspinabifidaassociation.org

Spina Bifida Support Group
Mumbai
Tel: +91 932 4404 064
LO: Mevr. Jahanvi Modi
E-mail: hkmodi@hotmail.com
http://www.spinabifidaclinic.in

Indonesia
Komunitas Spina Bifida Indonesia
JL. Mertilang XVIII KD 1/7
Sektor  9 Bintaro Jaya
Tangerang 15229
LO: Mrs. Regina Irawati
Tel: 62-21-7459303
Cell phone: 62-21-0815 975 0251
E-mail: irawati71@hotmail.com
http://www.spinabifida.cjb.net

Irlanda do Norte
Northern Ireland Association for Spina Bifida and Hydrocephalus
23 Dalboyne Park
Lisburn BT28 3BU
Tel.: +28 9260 1023 (home)
Mob.: +7843 573 516
LO: Mr. Sid McDowell, vice-president
Email: sidney.mcdowell@yahoo.co.uk
http://spinabifida-ni.org/

Malta
Spina Bifida and Hydrocephalus Association of Malta
PO Box 6
Maltapost
Naxxar
LO: Ms. Speranza Xuereb
E-mail : ranza@maltanet.net

Mexico
Asociacion Mexicana de Espina Bifida, A.C. (AMEB)
Maurice Baring # 295
Col. Jardines de la Patria
C.P. 45050
Zapopan, Jalisco
Tel/Fax: +55 33 3629-8003
LO: Mrs. Maria Teresa Rodriguez Mata
E-mail: ameb@espina-bifida.org

The Mexican Association for Spina Bifida and Hydrocephalus
Alejandro Dumas # 118
Jardine Vallarta
CP 450 20
Tel/Fax : +55 33 36 29 80 03
LO: Mrs. Paulina Soto Morales
E-mail: pausoto@hotmail.com

New Zealand
Spina Bifida Support Group
PO Box 19281
Avondale
Auckland
Tel.: +64 9 4119261
Fax: +64 9 4119261
LO: Mr. Russel Vickery
E-mail: russell@rjv.co.nz

Palestina
Abu Raya Rehabilitation Unit
Ramallah
Jaffa St. PO Box 1424
E-mail: aburiasb@planet.edu

South Africa
Association for Spina Bifida and Hydrocephalus
14 Avonwold Road
ZA-Saxonwold 2196
LO: Mrs. Veronica Julies
E-mail: hgh@iafrica.com

Uganda
Cheshire Homes Kampala
PO Box 16548
Kampala
Tel : 041/567410
Fax : 041/342729
E-mail: katalemwa@infocom.co.ug

Venezuela
Asociacion Venezolana de la Espina Bifida (AVEB)
Apart. Post. 88097 T.C. Hipico
Caracas, D.F.
Tel: +582 693 1002 & 662 1681
Fax: +582 6936 154
LO: Mr. José Ramon Medina
E-mail:  jrmedinab@cantv.net
http://www.aveb.com.ve

subscreva a nossa
folha informativa

 

 

IF Neurosurgery

Flour Fortification Initiative

Council of Europe

Include Everybody

European Year of Intercultural Dialogue

IFSBH Annual Report 2007

Global Partnership for Disability and Development

Folsaeure

International Disability and Development Consortium