About IF

Members

IF has two categories of membership: national membership and support membership. The national members are national associations for Spina Bifida & Hydrocephalus, representing all local groups in their country in the annual general meeting. All EU countries are working together in the IF –Europe division and are represented in the European Disability Forum (EDF). Support membership is open to anyone involved with Spina Bifida and/or Hydrocephalus. Local groups can also apply for support membership. List of official IF members Other contacts for Spina Bifida and Hydrocephalus

Official IF members Algeria Association des malades de Spina Bifida de Mostagenem villa no83 chemins de crètes (Mazagran) Mostagenem 27120 Tel: +213 6 99 51 90 36 Fax: +213 45 23 68 41 LO: Mr. Tarik Elyahyaoui E-mail: spinabifida27@yahoo.fr http://www.spinabifida27.unblog.fr Argentina Asociación Para la Espina Bífida e Hidrocefalia (APEBI) Victor Hugo 1547 Capital Federal  Republica Argentina Tel: +54 11 4568 1088 Fax: +54 11 4482 2282 E-mail: secretaria@apebi.org.ar http://www.apebi.org.ar Australia Australian Spina Bifida & Hydrocephalus Association (ASBHA) Spina Bifida Association of WA The Niche Suite B11, Aberdare Road Nedlands 6009 Tel:  +61 8 9346 7520 Fax:  +61 8 9346 7520 LO: Mr. Robert W Talbott E-mail: talbottmotorv8@optusnet.com.au http://www.asbha.org.au Austria Spina Bifida und Hydrocephalus Österreich (SB&HÖ) Postfach 88 A-1234 Vienna Tel: +43  664 492 0727 Fax: +43 1 879 2920 200 LO: Mr. Martin Ziegler E-mail: sbho@webb.at http://www.sbho.at Belgium Vlaamse Vereniging voor Spina Bifida en Hydrocephalus vzw (VSH) Spiegel 13 9860 Oosterzele-Scheldewindeke Tel/Fax: +32 9 324 41 36 LO: Mr. Hugo van den Berghe E-mail:  spinabifida@pandora.be http://www.spinabifida.be Brazil Associaçao de Espinha Bífida e Hidrocefalia do Rio de Janeiro (AEBH) Av. Prefeito Dulcídio Cardoso, 2.500 Bl 1 Apt. 606 - Barra da Tijuca 22631- 051 Rio de Janeiro Tel: +55 21 2439 4550 LO: Mrs. Rozangela Guimarães dos Santos E-mail: rozangelags@globo.com http://www.aebh.org Canada Spina Bifida and Hydrocephalus Association of Canada (SBHAC) / Association de spina-bifida et d'hydrocéphalie du Canada (ASBHC) 428-167 av. Lombard Avenue Winnipeg, MB R3B OV3 Tel: +1 204  925 3650 Fax: +1 204 925 3654  LO:   E-mail:  info@sbhac.ca http://www.sbhac.ca Denmark Rygmarvsbrokforeningen af 1988 Egebaeksvej 28 DK- 8270 Højbjerg Tel: +45 87 39 64 10 LO: Ms. Naja Andrup E-mail: naj@newmail.dk http://www.rygmarvsbrokforeningen.dk Estonia The Estonian MMC and HC Society Tervise 28 13419 Tallinn Tel: +37 2 697 4239 LO: Mrs. Ann Paal E-mail: ann.paal@mail.ee Finland Suomen CP-liitto ry Malmin Kauppatie 26 FI-00700 Helsinki Tel: +358 9 5407 5414 Fax: +358 9 5407 5460 LO: Carola Sandberg E-mail:  carola.sandberg@cp-liitto.fi http://www.cp-liitto.fi France Fédération Française des Associations du Spina Bifida (FFASB) 58 rue Pré Commun 31230 L'isle en Dodon Tel/Fax: +33 56 179 40 78 LO: Mrs. Maryse Demolombe E-mail: spinabifida.france@wanadoo.fr http://www.spinabifida.fr Germany Arbeitsgemeinschaft Spina Bifida und Hydrocephalus (ASBH) Münsterstrasse 13 D-44145 Dortmund Tel: +49 231 86 1050-0 Fax: +49 231 86 1050-50 LO: Mr. Klaus Seidenstücker E-mail: klaus.seidenstücker@asbh.de http://www.asbh.de Guatemala Asociación Guatemalteca de Espina Bífida (AGEB) 9a avenida 46-63 zona 12, Monte María 3, Ciudad de Guatemala Tel/Fax: +502 477 3375 LO: Mrs. Victoria Caceres de Sandoval E-mail: ebguatemala@gmail.com http://ebguatemala.blogia.com/ Ireland Irish Association for Spina Bifida and Hydrocephalus (IASBAH) Old Nangor Road IE-Clondalkin, Dublin 22 Tel: +353 1 457 2329 Fax: +353 1 457 2328 LO: Mrs. Angela O'Riordan E-mail: ahoriordan@iasbah.ie http://www.iasbah.ie Italy Federazione Associazioni Italiane Spina Bifida e Idrocefalo (FAISBI) c/o Croce Verde A.P.M Via San Vincenzo 25 20123 Milan Tel: +39 338-8178359 President: Maria Cristina Dieci E-mail: info@faisbi.it http://www.faisbi.it  Associazione Spina Bifida Italia (ASBI) Via Duomo 20 29020 Settima di Gossolengo (PC) Tel/Fax: +39 523 557596 LO: Mr. Enzo Bellotto E-mail: ebellotto@asbi.info http://www.asbi.info Japan Spina Bifida Association of Japan Otaku Nakarokugo 4-13-10-214 Tokyo Tel:  +81 45 943 9079 Fax:  +81 45 943 9145 LO: Mr. Akihiko Otsuka E-mail:  akihiro@zoo.email.ne.jp Luxembourg Association pour le Spina Bifida a.s.b.l. 5 Chemin de Bousberg Boîte Postale 20 L-7703 Bissen Tel:  +352 859 188 Cell phone : +352 91 65 05 71 Fax:  +352 858 540 LO:  Mrs. Andrée Biltgen E-mail: andree.biltgen@iha.lu E-mail: andree.biltgen@cathol.lu http://www.iha.lu/spinabifida/index.html The Netherlands BOSK Work Group Spina Bifida & Hydrocephalus Postbus 3359 NL-3502 GJ Utrecht Tel:  +31 30 2459090 Fax:  +31 2313872 LO: Mr. Teije Dijk E-mail:  teijedijk@hetnet.nl http://www.bosk.nl Norway Ryggmargsbrokk- og hydrocephalusforeningen Brynsveien 96 N-1352 Kolsås Norway Telephone: +47 67 13 09 00 Mobile: + 47 41 00 82 57 LO: Ms. Kristin Edwardsen E-mail:  Ann-Eli Spiten E-mail: leder@ryggmargsbrokk.org Web: www.ryggmargsbrokk.org Peru Asociacion Peruana de Espina Bifida e Hidrocephalia Arequipa (APEBHI) Av Jorge Chavez 527 Cerado Arequipa Tel: 054-206720 LO: Mrs. Sara Valdivia de Monroy E-mail: monroy.h@panam.com.pe Asociación de Espina Bífida e Hidrocefalia del Perú (ASESBIH) Av. La Capilla 1151, Dpto. 301 Rímac, Lima 25 Tel: 381-3527 Tel: 9999-5533 Fax: 433-6887 LO: Mr. Hugo Huapaya Rueda LO: Mrs. Delmy Pino Díaz E-mail: info@asesbihperu.org E-mail: delmy_pino@terra.com.pe http://www.asesbihperu.org Poland Stowarzyszenie Chorych z Przepukliną Oponowo-Rdezeniową R.P. (ASBP) ul. Żelazowej Woli 20/39A 20-853 Lublin Tel: +48 81 744 75 18 Fax: +48 81 443 85 76 LO: Mr. Jaroslaw Maruszczak E-mail: 4maruszki@neostrada.pl http://spinabifida.w.interia.pl Portugal Associação Spina Bifida e Hidrocefalia de Portugal (ASBIHP) Rua Botelho Vasconcelos Lote 567 C/D P-1900-637 Lisbon Tel:  +351 218 596 768 Fax: +351 218 596 768 LO:  João Coelho Email : sede@asbihp.pt http://www.asbihp.pt Romania Asociatia Romana de Spina Bifida si Hidrocefalie Strada Secuilor Nr 7, Bloc B31, Sc.3 Et.2, Ap.38 Sector 4, Bucuresti LO: Diga George Email: diga_george@yahoo.com Tel/Fax:  021/332.42.72 http://www.arsbh.ro/ Russia Association of Spina Bifida and Hydrocephalus St. Petersburg 198097, SPb. Stachek prosp. 35, 6 St. Petersburg Tel: +7 812 252 5137 Fax: +7 812 252 5137 LO: Mrs. Irina Rogaleva Email: spinabifida@mail.ru Scotland Scottish Spina Bifida Association (SSBA) The Dan Young Building 6 Craighalbert Way Dullatur Cumbernauld G68 0LS Tel:  +44(0)1236 794500 DDI: +44(0)1236 794507 Fax: +44(0)1236 736435 LO: Ms. Julie Snaddon E-mail:  julie@ssba.org.uk http://www.ssba.org.uk Slovakia Slovenská spoločnosť pre spina bifida a/alebo hydrocefalus, o.z. SNP 14 919 04 Smolenice Tel: +421 905 323 465 Tel: +421 335 587 198 LO: Mr. Andrej Drdul E-mail: drdulA@ba.zse.sk http://www.sbah.sk Spain  Federación Española de Asociaciones de Espina Bífida e Hidrocefalia (FEBHI) Pechuán 14, local 6 28002 Madrid Tel: +34 91 415 20 13 Cell phone: +34 650 39 63 41 Fax: +34 91 413 58 45 LO: Mr. Aitor Lascurain E-mail: proyectos@febhi.org http://www.febhi.org Associació Catalana d'Espina Bífida i Hidrocefàlia Sorolla 10, Baixos E-Barcelona 08035 Tel:  +34 93 428 2180 Fax:  +34 93 428 1934 LO: Arantxa Ormazabal E-mail:  adm.acaebh@telefonica.net http://www.espinabifida.cat Sweden RBU Box 8026 S-104 20 Stockholm Tel: +46 8 677 73 00 Fax: +46 8 677 73 09 LO: Mrs. Eva Toft E-mail:  eva.toft@telia.com http://www.rbu.se Switzerland Schweizerische Vereinigung Spina Bifida und Hydrocephalus (SBH) Rue du Joliment 22 2525 Le Landeron Tel:  +41 32 751 14 32 Fax: +41 32 751 14 32 LO: Mrs. Ines Boekholt E-mail: inesboekholt@msn.com www . spina-hydro.ch Turkey Spina Bifida Derneği 858 Sokak No: 9 Kat: 4/405 Paykoc ishani 35250 Konak / Izmir         Tel: +90 232 4416567 Fax: +90 232 4821858 LO: Mr. Ibrahim Ulman E-mail: ibrahim.ulman@ege.edu.tr UK Association for Spina Bifida and Hydrocephalus (ASBAH) 42 Park Road GB-Peterborough PE1 2UQ Tel:  +44 1733 555988 Fax:  +44 1733 555985 LO: Mr. Jon Burke E-mail: jon.burke50@ntlworld.com http://www.asbah.org USA Spina Bifida Association of America (SBAA) 4590 MacArthur Boulevard NW Suite 250 US-Washington DC 20007-4226 Tel: +1 202 944 3285 Fax: +1 202 944 3295 LO: Mr. Douglas Sorocco E-mail: douglas.sorocco@gmail.com http://www.sbaa.org

Other contacts for Spina Bifida and Hydrocephalus Belgium Association Spina Bifida Belge Francophone (ASBBF) Rue Neuve 70 4820 Dison Tel/Fax: +32 87 351 218 LO: Mr. Andre Baguette E-mail: info@asbbf.be http://www.asbbf.be http://www.vitamineb9.be Bulgaria Bulgarian Academy for Developmental Rehabilitation at Dejstwije Slantschev Latsch-Foundation Blvd. Russki 117 4000 Plovdiv Tel:  +359 32 270 872 Fax:  +359 32 270 871 LO: Y. Piskova, MD E-mail:  intermed@netvisio.net Burkina Faso Anomalies prénatales et hydrocéphalies Burkinabe (APHB) LO: Mrs. Claudine Flore Dangouri E-mail: dangflorebf@yahoo.fr Canada Spina Bifida and Hydrocephalus Association of Quebec Association de Spina-Bifida et d'Hydrocéphalie du Québec 5757, rue Decelles, bureau 425 Montréal (Québec) H3S 2C3 Tel:  +1 514 340-9019 or Tel: 1-800-567-1788 (province de Québec seulement) Fax:  +1 514 340-9109 E-mail:  info@spina.qc.ca http://www.spina.qc.ca Spina Bifida & Hydrocephalus Association of Ontario (SBHAO) 555 Richmond Street West, Suite 1006 Toronto, Ontario M5V 3B1 Tel: +1 416 214-1056 ext.31 Tel: 1-800 387-1575 http://sbhao.on.ca Chile  Santiago S.P.B. and Hydrocephalus Self-Help Group (ACHEB) Almirante Acevedo 5086 Vicatura, Santiago de Chile Tel: +56 2 2635428 LO: Mrs. Sophia Kummerlin E-mail: sophiakummerlin@hotmail.com ACHAB Sierra Blancha 7557 Las Condez, Santiago Tel: +56 2 224 2699 LO: Paz Rios E-mail : p.rios@fordfound.org Colombia Fundación Mónica Uribe Por Amor Carrera 77 # 33 a 73 Apt 402 Medellin E-mail: monuribe@epm.net.co Czech Republic Eeska asociace pro spinu bifidu a hydrocefalus (EASBaH) Kosmonautu 19 Brno LO: Dr. Antonin Koneèny E-mail: czasbah@hotmail.com Djibouti L’Association Spina-Bifida de Djibouti Fax: +253 35 89 323 LO: Abdallah Khayari E-mail: hadid.cfrt@intnet.dj Dominican Republic Dominican Republic Spina Bifida Support Group Calle Apolo #50, Urbanización Olimpo, Santo Domingo Tel: +809 488 7731 Tel: +809 262 27 82 LO: Mrs. Belkis Concepcion E-mail: belkis.concepcion@unilever.com Greece Association Hellenique pour le Spina Bifida et l' Hydrocéphalie 3 Levido Str., N. Erythrea P.O. Box 146 71 115 26 Athens Tel: +30210/6203710 Fax: +30210/6205307 LO: Demy Kotta E-mail: kottad@yahoo.gr Honduras Fundacion Hondurena de espina bifida e hidrocefalia (FUNHDESHI) Instituto de neurosciencias Colonia tepeyac calle Yoro. Edificio materdei P.B Tegucigalpa HONDURAS C.A Tel/Fax: (504) 239-4954/ 239-4964 E-mail: funhdeshi@yahoo.com Hong Kong The childhood Spina Bifida Support Group of Hong Kong G/F Wang Lai House Wang Tau Hom Estate Kowloon Tel: +852 2794 3010 Fax: +852 2338 4820 LO: Mr. Eddie, Chan Kit Leung E-mail: threesun@yahoo.com India Indian Spina Bifida Association (ISBA) G-14, C-Scheme Jaipur 302001 LO: Shantanu Jindel E-mail: C_jindel@datainfosys.net http://indiaspinabifidaassociation.org Spina Bifida Support Group Mumbai Tel: +91 99675 39461 LO: Mrs. Jahanvi Modi E-mail: jahanvimodi@gmail.com Indonesia Komunitas Spina Bifida Indonesia JL. Mertilang XVIII KD 1/7 Sektor  9 Bintaro Jaya Tangerang 15229 Tel: 62-21-7459303 Cell phone: 62-21-0815 975 0251 LO: Mrs. Regina Irawati Malta Spina Bifida and Hydrocephalus Association of Malta PO Box 6 Maltapost Naxxar LO: Ms. Speranza Xuereb E-mail: ranza@maltanet.net Mexico Asociacion Mexicana de Espina Bifida, A.C. (AMEB) Maurice Baring # 295 Col. Jardines de la Patria C.P. 45050 Zapopan, Jalisco Tel/Fax: +55 33 3629-8003 LO: Mrs. Maria Teresa Rodriguez Mata E-mail: ameb@espina-bifida.org The Mexican Association for Spina Bifida and Hydrocephalus Alejandro Dumas # 118 Jardine Vallarta CP 450 20 Tel/Fax: +55 33 36 29 80 03 LO: Mrs. Paulina Soto Morales E-mail: pausoto@hotmail.com New Zealand Spina Bifida Support Group PO Box 19281 Avondale Auckland Tel.: +64 9 4119261 Fax: +64 9 4119261 LO: Mr. Russel Vickery E-mail: russell@rjv.co.nz Northern Ireland Northern Ireland Association for Spina Bifida and Hydrocephalus 23 Dalboyne Park Lisburn BT28 3BU Tel.: +28 9260 1023 (home) Mob.: +7843 573 516 LO: Mr. Sid McDowell, vice-president Email: sidney.mcdowell@yahoo.co.uk http://spinabifida-ni.org/ Palestina Abu Raya Rehabilitation Unit Ramallah Jaffa St. PO Box 1424 E-mail: aburiasb@planet.edu South Africa Association for Spina Bifida and Hydrocephalus 14 Avonwold Road ZA-Saxonwold 2196 LO: Mrs. Veronica Julies E-mail: hgh@iafrica.com Uganda Cheshire Homes Kampala PO Box 16548 Kampala Tel: 041/567410 Fax: 041/342729 E-mail: katalemwa@infocom.co.ug Venezuela Asociacion Venezolana de la Espina Bifida (AVEB) Apart. Post. 88097 T.C. Hipico Caracas, D.F. Tel: +582 693 1002 & 662 1681 Fax: +582 6936 154 LO: Mr. José Ramon Medina E-mail:  jrmedinab@cantv.net