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International Federation for Spina Bifida and Hydrocephalus
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International Federation for Spina Bifida and Hydrocephalus - Homepage


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About IF

IF's goals

  • To improve the quality of life of people with Spina Bifida and Hydrocephalus
  • To encourage the establishment of new groups and national organisations of people with Spina Bifida and/or Hydrocephalus. Groups and organisations can contribute to IF's mission by supporting each other, influencing legislation, service delivery, training etc.
  • To support those groups and organisations
  • To influence the quality of service delivery to people with Spina Bifida and/or Hydrocephalus world-wide
  • To facilitate and promote the exchange of knowledge, information and examples of good practice at an international level; work with international bodies (UN, WHO, UNICEF, Council of Europe, EU, EDF, IDC, international NGOs etc.)
  • To stimulate research
  • To encourage primary prevention campaigns and influence international policies on primary prevention campaigns
  • To support people with Spina Bifida and/or Hydrocephalus in developing countries through projects of early detection, treatment and rehabilitation
  • To encourage cooperation between organisations (both within IF and externally)
  • To encourage international discussion on ethics to ensure that people with Spina Bifida and/or Hydrocephalus are included in all programmes (implementing UN Standard Rules)

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