About IF

IF's goals

To improve the quality of life of people with Spina Bifida and Hydrocephalus To encourage the establishment of new groups and national organisations of people with Spina Bifida and/or Hydrocephalus. Groups and organisations can contribute to IF's mission by supporting each other, influencing legislation, service delivery, training etc. To support those groups and organisations To influence the quality of service delivery to people with Spina Bifida and/or Hydrocephalus world-wide To facilitate and promote the exchange of knowledge, information and examples of good practice at an international level; work with international bodies (UN, WHO, UNICEF, Council of Europe, EU, EDF, IDC, international NGOs etc.) To stimulate research To encourage primary prevention campaigns and influence international policies on primary prevention campaigns To support people with Spina Bifida and/or Hydrocephalus in developing countries through projects of early detection, treatment and rehabilitation To encourage cooperation between organisations (both within IF and externally) To encourage international discussion on ethics to ensure that people with Spina Bifida and/or Hydrocephalus are included in all programmes (implementing UN Standard Rules)