english español français nederlands português italiano
International Federation for Spina Bifida and Hydrocephalus
home search sitemap contact disclaimer
International Federation for Spina Bifida and Hydrocephalus - Homepage

Introduction

IF's goals

Structure & Board

Members

Organisation of the month

Annual reports

Conferences

IF Awards

Activities

Acknowledgements

Sponsoring

Donations

Job opportunities

 

About IF

IF's mission

IF’s mission is to improve the quality of life of people Spina Bifida and/or Hydrocephalus throughout the world and to decrease the prevalence of Spina Bifida and Hydrocephalus by primary prevention.

Improving the quality of life and primary prevention are the motivation for everything IF undertakes. This is the same for the IF member associations. The most important way to fulfil that mission is to spread knowledge and to encourage contact between parents and persons with Spina Bifida and/or Hydrocephalus.

The importance of contact is recognition, not feeling alone or isolated, learning from each other. Parents as well as persons with Spina Bifida and/or Hydrocephalus often mention how important these contacts are. 

Knowledge is the first essential step towards minimising the effects of impairment. It ensures that people with Spina Bifida and/or Hydrocephalus are full partners in decision making and that carers, professionals and persons with Spina Bifida and/or Hydrocephalus all have access to the latest information.

IF’s knowledge comes from its unique global network with member associations in more than 40 countries. This network is the IF Knowledge Network, exchanging knowledge, information and examples of good practice at an international level. IF does this by organising workshops and conferences, and also through the IF projects in developing countries. The IF Knowledge Network initiates, encourages and facilitates research.
Parent groups and national associations play a key role in gaining and circulating information. This way IF encourages and facilitates new groups and associations.
 
The IF Knowledge Network is the platform for discussions on ethics, prevention, food fortification, new developments in treatment and care, and ensures that people with Spina Bifida and/or Hydrocephalus have a voice at global level.  

IF represents people with Spina Bifida and Hydrocephalus and their organisations at global level in other international bodies such as the United Nations, the World Health Organisation, the Council of Europe, UNICEF and NGOs.

subscribe to our newsletter

 

 

IF Neurosurgery

Flour Fortification Initiative

Council of Europe

Include Everybody

European Year of Intercultural Dialogue

IFSBH Annual Report 2007

Global Partnership for Disability and Development

Folsaeure

International Disability and Development Consortium