Organisation of the month
Irish Association for Spina Bifida & Hydrocephalus
Giving Hope & Support for a Brighter Future
The Irish Association for Spina Bifida & Hydrocephalus (IASBAH), founded in 1968, is a national organisation with local branches throughout Ireland. Each branch is run by a voluntary committee.
The Association was established for the care, welfare, interest, treatment, education, advancement and rehabilitation of persons with Spina Bifida and Hydrocephalus.
Several members enjoying our Summer Project. The Summer Project is an annual Project that promotes independence among our members. Building on social skills and confidence building are also key elements of the Project. It lasts for around six weeks every summer. This also includes a trip abroad.
IASBAH has a network of Family Support Workers who deliver advice, support and advocacy services to our members and their families. Our full staff includes specialist advisors in medical matters, youth development, education, occupational therapy, job facilitation, family support work, continence management and mobility – all of whom help to deliver our unique services to our members:
IASBAH’s services include:
- Support to parents of an infant, from diagnosis stage through to directing them to their nearest branch, where they will receive support and advice.
- Organisation of summer independence training projects, holidays and social events.
- Providing assessments for mobility aids.
- Arranging physiotherapy and occupational therapy.
- Providing support from branch members across the country.
Liaison with schools, home tuition and assistance with the purchase of educational equipment.
- Assistance with transport to schools and social outings for children and financial assistance for travel to clinics and hospitals.
- Providing assistance with medical entitlements.
- Footwear and Caliper Repair Centre.
Our Youth Development Officer recently introduced regional Mobility Training days. This picture shows a Dublin Branch member accessing a Dublin Bus.|
IASBAH has a range of publications and leaflets available and also organises seminars and lectures, covering issues from before the birth to those issues affecting the adult with Spina Bifida and/or Hydrocephalus. A quarterly magazine called ‘Ability’ is available to all members, or upon request from our National Office at Old Nangor Road, Clondalkin, Dublin 22. Tel: (00 353 1) 457 2329. Fax: (00 353 1) 457 2328. Email: email@example.com Website: www.iasbah.ie
IASBAH offers support for research into causes and prevention of Spina Bifida and Hydrocephalus. We also aim to research the needs of people with disabilities and influence those providing services to meet these needs.
Several of our Wexford Branch members at our national launch of our Torc Pin Campaign. Since the introduction of a new logo, we have produced pins in the style of a ‘Torc’. This was our first national campaign and we hope to raise much needed funds from the sale of the pins.
Advocacy and Lobbying|
IASBAH’s work involves helping our members to get the best from Health, Education and Social Services. We provide assistance with benefits and employment. On a national level, we lobby Government on many issues from improving the services available to encouraging employment of persons with disabilities.
IASBAH is working for a society in which all people with disabilities are valued, can make the most of their talents and can achieve their ambitions. We aim to enable our members to achieve full participation, in society at large and in the work of IASBAH.
The work of IASBAH is mainly financed by voluntary donations, trading activities and grants from charitable and corporate trusts.
Several spooky looking members enjoying our Halloween Party!
Old Nangor Road
Tel: (01) 457 2329. Fax: (01) 457 2328
Lo-call 1890 20 22 60
Contact Details of Branches -
Dublin Branch Office
Coolock Development Centre
Tel: (00 353 1) 848 5277
Fax: (00 353 1) 848 5228
Louth, Meath, Cavan & Monaghan
White Star Complex
Tel: (00 353 49) 555 9829
Mayo, Leitrim & Roscommon
Tel: (00 353 94) 44704
Fax: (00 353 94) 44705
Westmeath, Longford, Laois, Offaly & Galway
Midlands Health Board Regional Disability Services
Tel: (00 353 506) 28637
Fax: (00 353 506) 28607
Wexford, Carlow, Kilkenny, Waterford & South Tipperary
Unit 3 Enniscorthy Enterprise Centre
Mile House Road
Tel: (00 353 54) 36683
Organisation of the month|
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